What is endometriosis?

That was my first question when the consultant came to talk in the hospital last Friday. She was kind, knowledgable and incredibly friendly, but I was still struggling to fully understand what she was saying, although that might have been something to do with being drugged up on painkillers. 

I’ve been having pains around and during my period for months. Oh, and I’ll say this nice and early, I think it’s important to talk about health issues because it does more damage to not talk about such crucial things. Not talking about female medical conditions isn’t going to make them go away and I’m not shy. Anyways, I’ve been having pains that have gradually escalated into being sent into hospital because they got so bad. I’ve been worrying about it so much, terrified about what the source of the pain could me. Although I can’t be 100% accurately diagnosed until I have surgery, it’s looking likely I have endometriosis.

Thank you to my sister for the beautiful ‘get well soon’ flowers


In answer to the above question, it’s a chronic condition where womb lining grows in other areas in the body, causing intense pain. And I agree, it hurts like a bitch. 

It’s a lot to take in. That this is a lifelong condition. That it could affect fertility. That I may require surgery in the future. I wasn’t sure if I wanted to share such a massive thing online, but how could I not? For better or worse, I have this condition and it’s part of my life now, possibly even causing changes in my life so I wanted to share it on my personal platform. 

I’ve been reading about yoga and endometriosis


This is very much still a gluten free wholefood recipe and ideas blog, it always will be. But I would like to include posts relating to nutrition and chronic conditions and my journey with dealing with it all, or not some days! I hope it will connect me with an online community that will provide support as I move forward with this. 

Do you, or anyone you know, suffer from endometriosis? I would love to hear any thoughts you have about this, please feel free to leave me a comment. 

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29 thoughts on “What is endometriosis?

  1. I am in your position too! Although the pains have been for YEARS! In the past year I’ve ended up calling for an ambulance 3 times. Do you think any doctor or nurse has even mentioned endometriosis? Nope!

    Not until my last visit did a GP want to send me for a scan for Endo, which I’m due to have next month. I’d never heard of it, I’m scared, and it’s looking an awful lot like I have it.

    I don’t know anyone else that has it, and the amount of stick I get for taking days off work or cancelling plans due to my pain is just unfair, especially from previous employers! One even threatened me with ‘you’ll fail your probation, you can’t be that sick’.

    I’m sorry you’ve been dealing with this. You are not alone! ❤️

    Liked by 1 person

  2. (Sorry, I posted from the wrong account!) i am in your position too! Although the pains have been for YEARS! In the past year I’ve ended up calling for an ambulance 3 times. Do you think any doctor or nurse has even mentioned endometriosis? Nope!

    Not until my last visit did a GP want to send me for a scan for Endo, which I’m due to have next month. I’d never heard of it, I’m scared, and it’s looking an awful lot like I have it.

    I don’t know anyone else that has it, and the amount of stick I get for taking days off work or cancelling plans due to my pain is just unfair, especially from previous employers! One even threatened me with ‘you’ll fail your probation, you can’t be that sick’.

    I’m sorry you’ve been dealing with this. You are not alone! ❤️

    Liked by 1 person

    • Oh my goodness, it sounds like you’ve been having a time of it too! I was really lucky it seems to have got on the radar of a very experience consultant who is knowledgable and friendly too. Otherwise who knows how long this could have gone on for. I’m also very lucky that I work with nurses who are understanding and kind. They’ve been talking about flexible hours for when I’m having a bad flare up and access to counselling services. You have to push with your doctors and making sure you’re getting every scan/test/treatment available, it’s the only way you know. Good luck on your journey, I’m always here to support you! 💕

      Liked by 1 person

      • I’m so glad to hear you have all of that support, that’s exactly what you deserve! And yes, I had to push doctors so hard to get the help I needed with depression and that was difficult enough. Now that’s gone, I have more issues! Thank you, I am always here for you too!

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    • Oh my goodness, what a thing to go through! I hope you’re feeling much better now. I think I’m ready to face whatever this can through at me, although I’m sure some days I won’t feel so brave! 😄

      Liked by 1 person

  3. My niece has this condition. I wonder how many people have it and if the number is growing. She lives with a lot of pain and had been addicted to painkillers. I think one needs a combination of Western medicine, alternative medicine, and self help.

    Liked by 1 person

    • Thank you for taking the time to leave a comment 😊 It’s actually quite common, 1 in 10 women suffer from it in some form in the UK. I think I’m just starting to get my meds stable, but I agree that a combination is the best way to deal with this, sort of thinking holistically about how to manage it 😊

      Liked by 1 person

  4. I do hope whatever surgery you undertake fixes your issues long term and you can get back to your healthy lifestyle. I don’t know of anyone with that condition but it sounds dreadful.

    Good luck!
    Colin

    Liked by 1 person

    • Thank you so much for taking the time to leave a lovely comment. Surgery is no guarantee unfortunately, but I’m sure I’ll get better at managing this condition as time goes on 😊 Thanks for stopping by!

      Liked by 1 person

  5. I am so sorry to hear of your pain. I do not have endometriosis, but I do have a condition that leaves me in incredible pain some days, and can for days and months at a time. Yoga does help me, as does walking, rest when I need it, and watching what I eat as I have a whole host of food sensitivies. Hugs to you, I know you can use them.

    Liked by 1 person

    • Thank you so much for this incredibly kind comment. I’ve heard that yoga is very helpful for endometriosis so I’m going to try and get into my practice of it. I hope you find success with managing your pain and thank you for the hugs 💕

      Liked by 1 person

  6. Something I’ve found really helpful is the subreddit on Reddit called Endo. If you’re looking into surgery, I wanted to mention that the best current treatment, if you can access it, is called ‘excision’ surgery, where the endo tissue is surgically cut out, versus being burned away – endo has roots so it’s best to remove the roots. Burning it away doesn’t help much in terms of pain relief (sometimes it can actually worsen it), and sometimes you may need multiple surgeries per year with the burning method. Even though diagnosis and removal usually occur at once, so you don’t know 100% if it’s endo before going under for surgery, it’s better to have a doctor who is experienced in excision method just in case, so you can hopefully avoid multiple surgeries. Best wishes ❤

    Liked by 1 person

  7. Hello, thanks for your lovely comment re the coconut chutney recipe on my food site.
    I read your comment on Endometriosis- I agreed re talking about it. Lots of women are affected- myself included. I am a nurse and will be starting a health site soon. Will definitely put up a blog about this condition and I hope I can offer some advice that can prove helpful.
    Site will be called jemshealth.wordpress.

    Liked by 1 person

  8. Hello! I really am sorry for all of you. I don’t have endometriosis but I have other obstretic related issues. Among others, I have been advised to read a lot about nutrition that could help me with my situation. When reading about polycystic ovary syndrome, I read a bit about endometrioesis because both are common health conditions. Apparently, by following an anti-inflammatory based diet, you should be able to at least control the progression of symptoms and in the best case, improve your condition (even if it doesn’t go away). I don’t know if this is a reliable information but if natural remedies (including food) may help, you might want to try it. Good luck with processing the news (I’m sure it takes a long time to fully undertand what it means) and also good luck with the necessary adaptation that it requires. I hope you will feel better soon.

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  9. Thank you for being so honest and open! I thankfully have not had to deal with Endo, but I have developed large ovarian cysts, one that had to be surgically removed. That along with other health issues was the reason I started blogging, to share holistic methods to help my body heal and even try alternative methods to remove cysts and prevent them. I’m not sure if they actually work, but it certainly has made me feel better. It always help to find others to share in our struggles.

    Liked by 1 person

    • Thank you so much for taking the time to leave a lovely comment 😊 I think with health, especially female health, it’s important to talk about it because too often our aches and pains get swept under the carpet. I’ll be sure to check out your blog, I find holistic methods compliment my medication perfectly 😊

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  10. I’m so sorry you’re going through this. I’ve battled this disease as well for over 20 years. Endo awareness is so important to spread since it’s a very misunderstood disease. I’m glad you’re sharing what you’re going through. It helps others as well as yourself. Hugs your way ❤

    Liked by 1 person

    • Oh my goodness, I’m sorry you’ve been suffering with it for so long. I completely agree, the awareness is so important and I will continue to post about my experience. Thank you so much for your support 💕

      Liked by 1 person

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